Tuesday, January 20, 2009

I have Severe refractory edema from CHF, after MASSIVE MI. I need some input.?

I have ejection fraction 50% - auto accident provoked massive MI with huge scarring in all walls. I have normal lipids, kidney, liver, blood chemistries. but I am in agony from swollen legs and swollen abdomen & liver. Edema did not respond at all to LASIX, torsemide. HCTZ. No diuretic effects.whatever.
I was advised to try Metalazone, a powerful diuretic of another class. I visited an MD today and he insisted , "Oh try the torsemide another 2 weeks, then I'll consider giving you asmall dose of Metalazone, I reminded him that I tried torsemide 2 weeks already, no results & I'm badly swelling with water. He insisted that it was early to try Matalazone, & it was too powerful &he worried for my safety.But he admitted that I was critically swollen with edema from CHF - yet denied me any Rx for this alternate diuretic. I'm in agony from pain in my body and can't bend my legs to step anymore. Someone please advise me. He smirked at me and said " don't go on the Internet so much"
SOME GUY- I never said you were responsible for my fate. Several MDs kindly replied to me on this site and suggested this diuretic to try, which might work when furosemide & torosemide fail. I only want to help myself. this Dr wants to drag it out although he admits I'm very critically swollen. I have a non-curable illness, it will persist to the death, no definite resolution possible except a new heart. My EF is not considered bad but I'm in danger from massive swelling and my pain & restricted movement, speech, & breathing. so you - SOMEGUY - try to have heart within you and know that it could be you someday. Meantime, I accept my fate in the Lord's hands. I will surrender with joy rather than live with a terminal illness. I will not die in a hospital, but at home with my prayers and devotions.

cipro

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